Parents Louise and Andy, have resorted to keeping their curtains closed at the family home in Tonbridge, Kent, (in the UK), to help their son see their faces.
Harvey's condition, known as Achromatopsia, means he is also completely colour blind - and can only see the world in black and white.
Louise, 35, said her son may never see a sunrise or sunset because his eyes cannot handle the light.
Andy, 34, a recruitment consultant, said: 'Normal daylight to him is like the glare you get when you are driving on a wet day and sunlight reflects off the rainwater on the road.
'We have to make everything as dark as possible for him to be able to see.'
Harvey puts on his prescription sunglasses when he gets up, and wears them until he goes to bed - they are designed to let only 10 per cent of light in.
The condition means Harvey struggles to play outside on bright days and he has to take cover from the rays.
Harvey was diagnosed with Achromatopsia at Moorfields Eye Hospital, London, in December 2009 after his parents noticed he was having trouble focusing.
They were initially assured this was down to a condition called Nystagmus, but at seven months old they were told the devastating diagnosis.
Andy said: 'We were shocked, and felt numb as we hadn't heard of the condition before.
'As children so much is learnt through sight and observing things outdoors, such as wildlife in the trees or a plane in the sky.
'With Harvey we need to find other ways to show him so we use books and TV.'
Harvey's baby sister Megan, three months old, has also been diagnosed although she doesn't need special glasses yet, and can wear normal ones in bright light.
Louise said: 'We were distraught when we first found out and it felt like we were going through a kind of grieving process because we knew they wouldn't be able to see the world how we see it.
'They'll never know though as they were born with the condition and we certainly won't let it stop them doing what they want to do.'
Harvey now goes to Dorton House nursery run by the Royal London Society for the Blind, helping him to make the most of what little vision he has.
His sight means he won't ever be able to drive, and will need extra help in the classroom.
DailyMail
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This boy needs spiritual attention.
ReplyDeleteGod have mercy! only black and white?
ReplyDelete